New Room

Originally written Apr 25, 2012 8:16pm

Ryland moved to his new room on the regular floor yesterday afternoon.  It is painted bright orange and slightly resembles a Dreamsicle.

It is definitely different without 24-hour nurse supervision.  Ryland misses Nurse Amy and Nurse Emily from the PCICU.  But to no surprise on our part, they have already tracked him down for a visit.

Michael will be staying with Robin and Ryland tonight for the first time.  The floor rooms have full bathrooms and a bed, so they are having a family sleepover this evening.  It's helpful to Robin to have someone around to aide with feedings and of course numerous diaper/wardrobe changes.

Ryland is still not eating as well as the docs and nurses would like, so they hooked up his feeding tube again.  He just seems to be too lazy and sleepy to wake up long enough to eat.

They have started adding a little formula to his milk in order to boost the number of calories he is getting without having to increase the volume of milk.  Calories will help him grow stronger and healthier.  Don't we all wish that "adding" calories could be a part of our eating plans?

They also gave him the lowest dose of oxygen again last night, but the doctors say he should be find without it.

A lactation specialist visited today and she seems to think our little Superman, is also a self soother.  He apparently sucks on his tongue, which allows him to calm himself and sleep easily.

So while his feeding issues need to be addressed, they still tell Robin and Michael that he remains ahead of similar babies, who would most likely still be intubated at this point.

We are still optimistic that Ryland will be heading home sooner rather than later, but are not anxious to rush him.  When little man is ready to go home healthy, safely and happily, we will be ecstatic.

As usual, I can't write an update without mentioning just how wonderful the doctors and nurses are at Duke.  I'm not sure if other families feel the same way, but we truly believe they are Angels on Earth. 

Thanks to each of you who have been following Ryland's journey and sending your thoughts, prayers and words of encouragement.  His little "will of steel" is only further fortified through your support and desire to see his speedy recovery continue.